Speechmag

Aphasia charity needs online votes to Speakeasy

It is sad that, in spite of top level commitment to user involvement and community engagement, funding cuts mean charities including Speakeasy are having to seek income through routes such as the NatWest CommunityForce, where entrants are in competition for public online votes to win £6000.

Speakeasy was established in Bury almost 30 years ago with support from both social services and the NHS. Over the years the social services support was gradually withdrawn, but the primary care trust financed core services to which Speakeasy added a range of project work such as developing employment opportunities, computer therapy and piloting new approaches for people with aphasia.

Gill Pearl, Chief Executive of Speakeasy, wrote an article for the Winter 10 issue of Speech & Language Therapy in Practice with Gill Jackson of Dyscover, a specialist aphasia charity in Surrey. They described a pilot study of the Personal Development Programme, which promotes volunteering and increased activity among people with aphasia, bringing wide-ranging benefits to the participating individuals and their communities.

Gill explains, "Speakeasy has developed a justifiable reputation as a centre of excellence where people with aphasia from across the North West grow the skills to better navigate their lives with aphasia. In summer 2011, Speakeasy received the devastating news that the PCT had decided to withdraw 100 per cent of its financial support. This loss of funding may close Speakeasy. Although every effort is being made to seek alternative funds, the current financial climate and changes in the health and social care sectors are compounding the difficulties."

I have registered and cast a vote to support Speakeasy's attempts to win £6000 of stop-gap funding and hope other people who have an interest in aphasia will do so too before the closing date of 23 October. This doesn't have to mean that I like the recent trend among big companies to use social media to advertise their products. Such methods certainly will not provide a sustainable approach to funding of charities who provide important services that complement and enhance those offered by health and social care.

Penultimate issue of Speech & Language Therapy in Practice now out

The Autumn 11 issue of Speech & Language Therapy in Practice has been mailed today, so subscribers can expect it through their door very soon!

Cover star Dan sustained a severe head injury in 2007, and Lindsay King describes how revisiting Melodic Intonation Therapy has helped his recovery. Our second 'How I manage acquired brain injury' contribution comes from Laura Flynn in Jersey and is written in memory of another inspiring client, Suzannah Pemberton.

The client-centred theme continues with Karen Leadbitter's reflection on empowering Rhys, a man in his thirties with Down's syndrome, to participate in training his own staff. Lynsey Paterson also concentrates on training, using a literature review to develop parent training following an autism diagnosis.

In the well received Journal Club, Jennifer Reid tackles critical appraisal of observational studies, and subscribers can download two associated frameworks from the members' area of www.speechmag.com. Sam Simpson & Cathy Sparkes continue their goal negotiation series, and include discussion of the thought-provoking Model of Change by Prochaska and DiClemente (1986).

In 2009, Louise Greenstock wrote an interim report on her PhD research into the use of graphic symbols in schools, and here she shares her final findings. These include a theoretical framework which looks as if it would be very helpful in practice.

Alison Roberts is back with 'Here's one I made earlier'. Her low cost and fun therapy suggestions for groups have proved so popular that Speechmark has released a book of them! Cynthia Pelman tells us about one of her top resources, Stern Structural Arithmetic, and Jan Broomfield explores the ethical issues raised when your new referral is the son of your Trust's Chief Executive Officer... 

As well as reviews and editor's choice from the journals, we have brief contributions from Diana James about Paget Gorman Signed Speech, and a delightful snapshot of Nicola Grove's granddaughters talking about talking. As always there are great reader offers, including a Grow Words resource set, books from Plural Publishing and the recently released New Reynell Developmental Language Scales (NRDLS).

You can sign up for all 4 issues in the final year of Speech & Language Therapy in Practice. You will also receive the Winter 10 issue free, and get access to the members' area of www.speechmag.com until 29 February 2012.

Voice banking to preserve the freedom of speech

More on voice banking, a subject I posted on a year ago when Laurence Brewer was interviewed for Radio 4’s Word of Mouth. This time there was a Scottish flavour to another Radio 4 programme ‘Giving the Critic Back His Voice’, presented by Deacon Blue’s Ricky Ross.

Mike Arnott - who is originally from Belfast but now lives in Aberdeen – is 45 and has motor neurone disease. He was referred to speech and language therapist Karen Yuill at a time when he had no speech difficulties to explore possibilities for voice banking. Like Laurence, his goal was primarily to ensure his children would still be able to hear him as him in the event of him losing his speech and voice as the disease progressed. As he says, “How you sound is so much of who you are.”

Karen explains that she had to go away and do a bit of reading and, “We kind of explored the whole thing together really”. Initially this was via ModelTalker, which was straightforward but left Mike a little disappointed.

The next port of call was Edinburgh based company CereProc. They specialise in characterful speech synthesis, and created a text-to-speech voice for film critic Roger Ebert from his recorded documentaries when he was diagnosed with thyroid cancer. The process adopted for Mike involves software recording thousands of phrases and sentences based on phonetic coverage so that all speech sounds can be captured in a way that will make the synthesis sound as natural as possible.

The programme explores the difficulty for synthetic voices in conveying emotions and feelings adequately, including humour, boldness, fear, anger, excitement and joy. Joanna Courtney from CALL Scotland is interviewed about CereProc’s female Scottish voice ‘Heather’, as is Louise Smith whose 19 year old daughter Leanna has Worster-Drought Syndrome. She has been excited to get the Heather voice for her communication aid as it sounds “so normal”.

Michael Arnott says that after the months of recording there was “a hesitation pressing the play button just in case I’d be disappointed – but I certainly wasn’t.” Most importantly, his 8 year old immediately said, “'That’s you daddy!' And I was so pleased because all of that’s been part of the goal...they still hear me as me.”

You can download Scottish voices from the CereProc website. The programme is available for a limited period on BBC iPlayer.

Summer 11 Speech & Language Therapy in Practice out now!

The Summer 11 issue  of Speech & Language Therapy in Practice magazine was mailed to subscribers on Friday and Saturday, so should be with you very soon.

As well as the second instalment in the new goal negotiation series and an 'In Brief' contribution that puts the accent on aphasia, we have an uplifting story of the evolution and impact of a total communication project across Devon. In 'Journal Club', Jen Reid provides a framework for critical appraisal of intervention studies, while 'Boundary Issues' looks at the ethics of new professional roles.

We hear about a collaborative project with a children's centre and library service in an area of deprivation, which seems to highlight the benefits of targeting training on selected individuals. We also get a glimpse into the speech, language and communication needs of prisoners completing community sentences.

The cover feature is on using the evidence in dysphagia management. Hannah Crawford and Julie Bake explain why they have moved away from previous practice and introduced oral taster programmes with people with learning disabilities who gain their nutrition via PEG, while Celia Harding and colleagues use a problem solving framework to support appropriate intervention for infants and children with early feeding, eating and drinking difficulties.

We have reader offers for Photosymbols 4, I CAN Secondary Talk narrative and a Grow Words resource set, as well as Editor's Choice, three pages of reviews and 'Here's one I made earlier' on encouraging clients to make their own books. As always it is good to the very last page, where Kate Balzer shares some of the ideas for working with people with dementia from a SIGDOM therapy swapshop.

Enjoy!

Comic Relief, stammering, and the real irony

Humour can be difficult to get right - but last night Lenny Henry and the BBC got it very wrong.

My children have been very moved by the various TV programmes leading up to Comic Relief, in particular one involving Lenny Henry in Kenya. On their own initiative they set themselves challenges and got sponsorship. Their questions have led us to discuss politics, culture and the use of humour to highlight inequalities, injustice and our own inconsistencies.

It beggars belief that Comic Relief would open with a spoof of The King's Speech which involved absolutely no irony, hidden message or clever humour. All it said was - it's OK to roll your eyes and laugh at people who stammer, to interrupt them, to hurry them, to make fun of them and to finish their sentences. What sort of signal does that send out to young people who stammer and to their peers who are so crucial to their self-esteem and acceptance?

In a strongly worded complaint Leys Geddes, chair of the British Stammering Association, said, "Thousands of children are teased and bullied every day simply because they stammer. By doing stuff like this, you give other children permission to continue this foul treatment and encourage adults to snigger and turn a blind eye...In your drive for audiences and edge, you trample on the very vulnerabilities you claim to dispel."

The BBC recently showed an excellent programme about young people attending a course at the Michael Palin Centre for Stammering Children. Comic Relief spends considerable sums on anti-bullying projects. It's a pity that no-one involved in the production or showing of the opening sketch seems to have spotted this real irony.

Spring has sprung at Speech & Language Therapy in Practice

Mailing of the bumper Spring 11 issue of Speech & Language Therapy in Practice is now complete and, as always, it is blooming with practical and inspiring articles.

We have a new arrival, Whose goal is it anyway?, a series for 2011 on goal negotiation from Sam Simpson and Cathy Sparkes. Journal club continues with a look at critically appraising systematic reviews, Editor's choice is on stammering, and Boundary issues is back with the ethical minefield when work and home life meet.

Other articles are on:

• putting people with learning disabilities in control of where they live and with whom
• introducing TOPICC (Targeted Observation of Pragmatics in Children's Conversations)
• reducing the risk of choking in adults with learning disabilities or mental illness
• training people with aphasia and their carers to communicate effectively beyond therapy
• resources for being an effective national specialist adviser.

And, as you would expect, we have fantastic reader offers (for NDP3 Speech Builder, Grow Words, and Independence Through Communication) as well as reviews of books and resources and more low cost ideas for groups in Here's one I made earlier.

New subscribers to Speech & Language Therapy in Practice should note that, in addition to the 4 issues for 2011, they will get a free copy of the Winter 10 issue.

Happy reading!

New 'Communicating ethics' article explores use of Seedhouse grid

There wasn't room for 'Boundary issues' in the Winter 10 issue of Speech & Language Therapy in Practice - but don't despair if you missed your ethics fix, as I have just published an online only article which explores the use of the Seedhouse grid.

'Communicating ethics' is a collaborative effort from Professor Jois Stansfield of Manchester Metropolitan University and Jane Handley, one of her former students and now a practising therapist.

When Jane was in her final year she found a series of workshops on a case-based approach to ethical reasoning very helpful. As she says, we frequently need to make decisions that "are often difficult to resolve because they present ethical dilemmas which cannot be reasoned out with logic alone. To achieve the best possible outcome, it seems that a moral judgement is also required." 

The article explores how Jane used David Seedhouse's Ethical grid with a hypothetical client, Bryan (5), who has profound physical and cognitive disabilities. His parents are looking for a second opinion, as they do not believe sufficient time is being allocated to his feeding in school or in respite. This was the first Manchester Metropolitan University speech and language therapy case to be presented in Seedhouse's Values Exchange, an online approach to ethical decision-making.

Autumn 10 issue now out!

The Autumn 10 issue of Speech & Language Therapy in Practice was mailed on Friday. (My own copy hasn't made it to Scotland yet, but I know some people got theirs as early as Saturday!)

It includes:

• our new series to help you with critical appraisal of the literature
• teaching indirect interaction techniques to education staff
• working with people with aphasia in a community arts venue
• scaffolding opportunities for silent bilingual children to speak out
• How I support TEP (tracheoesophageal puncture) closure
• complementary therapy - exploring our boundaries
• my top resources for working outside the NHS
• what's hot and what's not: book, resource and software reviews
• In Brief - chewing in children with mild cerebral palsy
• Here's one I made earlier - the menu game
• Editor's choice - adolescents, aphasia, intergroup contact
• win our free reader offer for The Communication Toolkit

New subscribers always receive an extra issue FREE in their first year.

'ASHA needs to actively enforce its code of ethics' petition

The Chair of the British Stammering Association is urging people to join him in petitioning ASHA to prevent misleading claims that stammering is curable.  

Leys Geddes has been at the forefront of a UK campaign to ensure that people understand there is no universal 'cure' for stammering and that very few adults recover. He wants to ensure people who stammer are not given false hopes, and that people who do not stammer are not given a false impression of the condition.

Leys says, "Within the UK we have seen some considerable success but, as the web is international, it has been difficult to stamp it out worldwide. We approached authoritative organisations in other countries, particularly the States, asking for their support. Many have come on board but, disappointingly, the American Speech-Language-Hearing Association (ASHA) declined, explaining that, in their view, these claims were a case of 'let the buyer beware'."

The new 2010 ASHA code of ethics includes rules, which are "specific statements of minimally acceptable professional conduct or of prohibitions". One of these states, "Individuals shall not guarantee the results of any treatment or procedure, directly or by implication; however, they may make a reasonable statement of prognosis." ASHA members Peter Reitzes (co-host of StutterTalk) and Dr Phil Schneider believe that speech-language pathology colleagues marketing their services with phrases such as 'Discover how to stop stuttering' and '12 days to fluent speech' are violating this rule. They have therefore started a petition to ask ASHA to enforce it. 

Leys comments, "It is both brave and sad that two speech-language pathologists, and ASHA members, must ask for support from the outside world to fight against a refusal by their own professional body to uphold such a straightforward ethical issue. Stammerers need to stand together on these issues, so every signature will be important."